Caregiver resources

Share these resources with your patients’ families to help them navigate SMA and the ZOLGENSMA treatment process. Some materials are also available in Spanish.

Patient and caregiver support 

OneGene Program Logo | ZOLGENSMA® (onasemnogene abeparvovec-xioi)

Get support for you, your patients, and their families through the OneGene Program®

Patient advocacy groups

Patient advocacy organizations and other disease foundations can help caregivers and families contend with a new diagnosis, learn about SMA, and build meaningful connections.

Learn more about advocacy groups that support and educate families living with SMA at

Materials for caregivers

Explaining SMA and ZOLGENSMA to Others

Facts About SMA


A Caregiver’s Guide to ZOLGENSMA

SMA After Treatment

Prenatal SMA Diagnosis Checklist

Post-Treatment Plan for Caregivers

Caregiver Preparation Checklist